- Brain deterioration due to Alzheimer’s Disease
- National Institute on Aging, National Institutes of Health. (n. d.) Retrieved March 18, 2014 from http://www.nia.nih.gov/newsroom/resources/images-and-video.
- Changes in memory, thinking, and function in dementia
- Hospice of the Valley, 2006; revised 2012.
- Common dementia-related behaviors in the progression of the disease
- Hospice of the Valley, 2006.
- Comfort matters for people with dementia
- Hubbard, G., Cook, A., Tester, S., & Downs, M. (2002). Beyond words: Older people with dementia using and interpreting nonverbal behavior. Journal of Aging Studies, 16(2), 155-167.
- Kitwood, T. (1997). The experience of dementia. Aging & Mental Health, 1(1), 13-22.
- Kolcaba, K. Y. (1994). A theory of holistic comfort for nursing. Journal of Advanced Nursing,19(6), 1178-1184.
- March, A., & McCormack, D. (2009). Nursing theory-directed healthcare: Modifying Kolcaba’s comfort theory as an institution-wide approach, Holistic Nursing Practice, 23(2), 75-80.
- Medical and palliative care models
- Fox, E. (1997). Predominance of the curative model of medical care: A residual problem. Journal of the American Medical Association, 278(9), 761-764. Retrieved June 19, 2015 from http://www.fammed.washington.edu/palliativecare/requirements/FOV1-00015079/PCvCC.htm?FCItem=S00D339AE?WasRead=1
- Jerant, A. F., Azari, R. S., Nesbitt, T. S., & Meyers, F. J. (2004). The TLC model of palliative care in the elderly: Preliminary application in the assisted living setting. Annals of Family Medicine,2(1), 54-60. Retrieved July 16, 2015 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1466621/.
- Login, C. C. (2012). Palliative care: A multidisciplinary approach. European Journal of Science and Theology, 8(2), 61-69. Retrieved June 19, 2015 from http://www.ejst.tuiasi.ro/Files/33/Login%20%287%29.pdf.
- Consistent assignment staffing for comfort care
- Illinois Foundation for Quality Health Care. (n.d.). Change ideas for consistent assignment. Retrieved June 30, 2016 from https://afmc.org/aippdocs/cchome/library/Change%20Ideas%20-%20Consistent%20Assignment.pdf
- Advancing Excellence in America’s Nursing Homes. (n.d.). Increasing use of consistent assignment. Retrieved June 30, 2016 from https://www.nhqualitycampaign.org/files/factsheets/Staff%20Fact%20Sheet%20-%20Consistent%20Assignment.pdf
- Advancing Excellence in America’s Nursing Homes. (2016). Consistent assignment. Retrieved June 25, 2016 from https://www.nhqualitycampaign.org/goalDetail.aspx?g=ca.
- Farrell, D., & Frank, B. (2007, July). A keystone for excellence. Provider: Long Term & Post-Acute Care. Retrieved July 25, 2016 from http://www.fhca.org/members/qi/culture/keystone.pdf
- Definitions of key concepts
- Martin, G. A., Sgrillo, J., & Horton, A. (2011). Personhood. In G. A. Martin & M. N. Sabbagh (Eds.), Palliative care for advanced Alzheimer’s and dementia: Guidelines and standards for evidence-based care (pp. 43-53). NY: Springer.
- Martin, G. A., & McCarthy, M. (2011). Managing behavior problems associated with advanced dementia. In G. A. Martin & M. N. Sabbagh (Eds.). Palliative care for advanced Alzheimer’s and dementia: Guidelines and standards for evidence-based care (pp. 65-81). NY: Springer.
- Lindstrom, K. B., Bosch, R., Cohen, R. M., & 9 additional authors. (2011). Caregiving. In G. A. Martin & M. N. Sabbagh (Eds.). Palliative care for advanced Alzheimer’s and dementia: Guidelines and standards for evidence-based care (pp. 25-40). NY: Springer.
- State of Wisconsin Department of Health and Family Services Division of Elder and Disability Services. (2006). Person-directed dementia care assessment tool: A guide for creating quality of life and successfully refocusing behavior for people with Alzheimer’s disease and related dementia in long term care settings, III. Retrieved August 2, 2014 from http://www.dhs.wisconsin.gov/publications/P2/p20084.pdf
- Caspar, S., & O’Rourke, N. (2011). Measurement of workplace empowerment across caregivers. Geriatric Nursing, 32, 156-165.
- Cultural competence: Definition, requirements, and importance
- U.S. Department of Health and Human Services, National Institutes of Health. (2015, March 25).Cultural competency. Retrieved August 9, 2015 from http://www.nih.gov/clearcommunication/culturalcompetency.htm.
- Adapted from Alzheimer’s Association. (n.d.). Cultural competence. Retrieved August 9, 2015 from http://www.alz.org/Resources/Diversity/downloads/GEN_EDU-10steps.pdf
- What caregivers should know about persons with dementia
- Beatitudes Campus, 2007; revised 2013.
- What caregivers should know about families
- Beatitudes Campus, 2007; revised 2013.
- Notes for thinking about cultural diversity
- De Vera, N., Beardsley, M., Chartrand, H., & 9 additional authors. (2011). Cultural diversity. In G. A. Martin & M. N. Sabbagh (Eds.). Palliative care for advanced Alzheimer’s and dementia:Guidelines and standards for evidence-based care (pp. 173-180, 188-193, 196-225). New York: Springer.
- Steps toward culturally sensitive dementia care
- Alzheimer’s Association. (n. d.). Cultural competence. Retrieved August 9, 2015 from http://www.alz.org/Resources/Diversity/downloads/GEN_EDU-10steps.pdf
Comfort Matters Course References
- Competencies for job roles
- Alonzo, T., & Long, C. O. (2007). 1:1 Peer training: Direct care experience & competencies. Palliative Care for Advanced Dementia: A Model Teaching Unit. Unpublished manuscript.
- Facilitators, core- and neighborhood teams, meeting procedures
- Alonzo, T. (2014) Essential elements of staff meetings: The Beatitudes Model: Training booklet.
- Staff empowerment
- Laschinger, H. K. S., Finegan, J. E., Shamian, J., & Wilk, P. (2004). A longitudinal analysis of the impact of workplace empowerment on work satisfaction. Journal of Organizational Behavior, 25, 527-545.
- Common dementia-related behaviors in the progression of the disease
- Hospice of the Valley, 2006
- Changes in memory, thinking, and function in dementia
- Hospice of the Valley, 2006; revised 2012
- What caregivers should know about persons with dementia
- Beatitudes Campus 2007; revised 2013.
- Basic approaches to caregiving for persons with dementia
- Martin, G. A., & McCarthy, M. (2011). Managing behavior problems associated with advanced dementia. In G. A. Martin & M. N. Sabbagh (Eds.), Palliative care for advanced Alzheimer’s and dementia: Guidelines and standards for evidence-based care (pp. 65-81). New York: Springer.
- Dementia-friendly milieus
- Martin, G. A., Sgrillo, J., & Horton, A. (2011). Creating the optimal milieu for care. In G. A. Martin & M. N. Sabbagh (Eds.), Palliative care for advanced Alzheimer’s and dementia: Guidelines and standards for evidence-based care (pp. 55-64). New York: Springer.
- I-Care plan for resists care-service
- I-Care plans, Beatitudes Campus, 2007; revised 2015
- Components of I-Care plans
- Beatitudes Campus, 2007; revised 2013.
- Challenges to pain assessment in dementia
- End-of-Life Nursing Education Consortium. (2010). Pain assessment and management, Module 2, pages M2-7 and M2-8.
- Steps in making a pain assessment
- Herr, K., Coyne, P. J., McCaffrey, M., Manworren, R., & Merkel, S. (2011). Pain assessment in the patient unable to self-report: Position statement with clinical practice recommendations. Retrieved June 20, 2015 from http://www.aspmn.org/documents/PainAssessmentinthePatientUnabletoSelfReport.pdf
- Faces Pain Scale Revised (FPS-R)
- Hicks, CL, von Baeyer, CL, Spafford P, van Korlaar I, Goodenough B. Faces Pain Scale-Revised:Toward a Common Metric in Pediatric Pain Measurement. PAIN 2001; 93:173-183.
- Pain Thermometer Scale
- Keela Herr, PhD, RN, FAAN, AGSF, The University of Iowa, College of Nursing.
- Pain location chart
- Beatitudes Campus, 1999.
- PAINAD Scale: Pain Assessment in Advanced Dementia
- Warden,V., Hurley, A. C., & Volicer, L. (2003). Development and psychometric evaluation of the Pain Assessment in Advanced Dementia (PAINAD) Scale. Journal of the American Medical Directors Association, 4(1),
- Checklist of Nonverbal Pain Indicators
- Feldt, K. S. (2000). The checklist of nonverbal pain indicators (CNPI). Pain Management Nursing, 1(1), 13-21.
- Examples of goals and outcomes for pain management
- I-Care Plans, Beatitudes Campus, 2007; revised 2015.
- Nonpharmacologic interventions for pain management
- End-of-Life Nursing Education Consortium. (2010). Pain assessment and management: Module 2, pages M2-76 through M2-96.
- Steps in pharmacologic interventions to address pain
- Long, C. O., & Morgan, B. (2008). Pain management. The resource guide for home health care and hospice nurses. Baltimore, MD: Hopkins Educational Resources.
- Kovach, C. R., Noonan, P. E., Schlidt, A. M., Reynolds, S., & Wells, T. (2006). The serial trial intervention: An innovative approach to meeting needs of individuals with dementia. Journal of Gerontological Nursing, 32(4), 18-25.
- Medications for pain according to its intensity levels
- WHO Pain and Palliative Care Communications Program. (2006). Cancer Pain Release. Retrieved August 7, 2014 from: http://www.geriatricpain.org/Content/Management/Interventions/Documents/WHO%20ladder.pdf
- I-Care Plan for Acute Pain Management
- I-Care Plan for Chronic Pain Management
- I-Care Plans, Beatitudes Campus, 2007; revised 2015.
- PAINAD item definitions
- Warden,V., Hurley, A. C., & Volicer, L. (2003). Development and psychometric evaluation of the Pain Assessment in Advanced Dementia (PAINAD) Scale. Journal of the American Medical Directors Association, 4(1), 9-15.
- Pain management policy and procedures
- Beatitudes Campus, Policies and procedures, 2007; revised, 2014.
- Changes in memory, thinking, and function in dementia
- Hospice of the Valley, 2006; revised 2012.
- Sensory experiences
- Cohen-Mansfield, J., Libin, A., & Marx, M. S. (2007). Nonpharmacological treatment of agitation: A controlled trial of systematic individualized intervention. Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 68(8), 908-916.
- Kverno, K. S., Black, B. S., Nolan, M. T., & Rabins, P. V. (2009). Research on treating neuropsychiatric symptoms of advanced dementia with non-pharmacological strategies, 1998-2008: A systematic literature review. International Psychogeriatrics/IPA, 21(5), 825-843.
- What caregivers should know about persons with dementia
- Beatitudes Campus, 2007; revised 2013.
- I-Care plan for making connections
- I-Care Plans, Beatitudes Campus, 2007; revised 2015.
- The change processes
- Sowell, E. J. (2005). Curriculum: An integrative introduction (3rd edition, pp. 10-16). Upper Saddle River, NJ: Pearson Prentice Hall.
- Vision and mission statements: Meanings and examples
- Alzheimer’s Association. Desert Southwest Chapter. About Our Chapter. (2014). Retrieved March 12, 2014 from http://www.alz.org/dsw/in_my_community_about.asp
- Vermilion Cliffs. Beatitudes Campus, 2006.
- Choices in care models
- Fox, E. (1997). Predominance of the curative model of medical care: A residual problem. Journal of the American Medical Association, 278(9), 761-764. Retrieved June 19, 2015 from http://www.fammed.washington.edu/palliativecare/requirements/FOV1-00015079/PCvCC.htm?FCItem=S00D339AE?WasRead=1
- Jerant, A. F., Azari, R. S., Nesbitt, T. S., & Meyers, F. J. (2004). The TLC model of palliative care in the elderly: Preliminary application in the assisted living setting. Annals of Family Medicine, 2(1), 54-60. Retrieved July 16, 2015 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1466621/.
- Login, C. C. (2012). Palliative care: A multidisciplinary approach. European Journal of Science and Theology, 8(2), 61-69. Retrieved June 19, 2015 from http://www.ejst.tuiasi.ro/Files/33/Login%20%287%29.pdf
- Dementia-friendly milieus
- Martin, G. A., Sgrillo, J., & Horton, A. (2011). Creating the optimal milieu for care. In G. A. Martin & M. N. Sabbagh (Eds.), Palliative care for advanced Alzheimer’s and dementia: Guidelines and standards for evidence-based care (pp. 55- 64). New York: Springer.
- Vision and mission statements: Three types of organizations
- Comprehensive Hospice and Palliative Care. (2013). Retrieved March 15, 2014 from http://chpchospice.com/chpc-mission/.
- Alzheimer’s Association. Desert Southwest Chapter. About Our Chapter. (2014). Retrieved March 12, 2014 from http://www.alz.org/dsw/in_my_community_about.asp.
- Vermilion Cliffs. Beatitudes Campus, 2006.
- Basic ideas in consensus decision-making
- Consensus decision-making: How to use consensus process (n. d.) Retrieved March 12, 2014 from http://www.consensusdecisionmaking.org/.
